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Your donation will support many children and
infants with seizure disabilities. Thank you
for your support!
Hi! I am Kierra Grace. I am 8 years old and love life! I love to be
outdoors and to run, run, run! I love to watch the leaves blow in the
trees and listen to water running and feeling the sun on my face. My
mama and my brother are beside me at all times because I have a
severe seizure disorder. Without warning I will go into a seizure 3-6
times a day. I cannot talk to let my mama to let her know I am
feeling funny. I have tried many different medicine combinations
and nothing has slowed the seizures. I do have a Vegal Nerve
Stimulator inserted which has slowed them down from 40-60 a day.
I don’t want to be stuck in a wheelchair for my safety always
wondering when a seizure is going to hit.
Kierra Grace was diagnosed with Tuberous Sclerosis at age 11
months and was found to be in the advanced stages of this
disease. It is a condition in which tumors can grow on any organ in
the body. Kierra Grace was born with the ones in her brain. Some
conditions that she has are Autism, Developemental Delay,
expressive and recessive language delay, gross and fine motor
delays, and Lennonx-Gastaut syndrome. This is a rare and non
treatable form of epilepsy. She does not qualify for brain surgery
because all of her seizures are generalized, which means they
happen all over her brain. Kierra Grace is at high risk for SUDEP,
which refers to the unexplained death of an individual, with a
diagnosis of epilepsy, who dies suddenly. She is also at high risk
for accidental death by a seizure in which she falls and the injury is
so great it kills her.
Kierra Grace has dangerous drop seizures. Kierra Grace stops
breathing and has rescue meds that need to be administered
because the seizures come in clusters and don’t stop. Her mom
needs to leave her baby girl on the floor to run and grab her seizure
medicine. A dog can do many things for her family. The dog can
retrieve a medicine bag during a seizure. The dog can also alert
before a seizure strikes to prevent further injury. This will all allow
Kierra Grace to be able to run as she likes and have freedom
outside of a wheelchair.
Thank you for your donation that is so desperately needed for
Kierra Grace's dog.
Brady Lynn is one of the funniest kids you will ever meet. Her love
of life and quick wit often help her in her many daily struggles.
Brady’s strength is also an inspiration to anyone who has the
pleasure of meeting and spending time with her.
At the tender age of three months, Brady was found blue in her crib
by her mother. This incident led to unexplained seizures. These
seizures have led her family on a quest to help their daughter.
Brady has been seen by doctors around the United States from
Ohio, to Pennsylvania, to New York, to New Jersey. These doctors
have put her through many uncomfortable medical tests and many
days in various hospitals.
At the age of three, Brady was diagnosed with generalized,
refractory epilepsy. This type of epilepsy cannot be treated with
brain surgery because it affects her entire brain. Medicines also do
not work to control her seizures. She has been on 8 different kinds
in her short life, none that have worked for an extended period of
A Seizure Alert and Assistance dog will be able to tell Brady's
parents when she is having a seizure, comfort Brady after a seizure
with a trained task called Deep Pressure Therapy, will be able to
retrieve needed items in an emergency and will even be able to dial
a specially designed assistance dog telephone, notifying
emergency personnel of their immediate needs.
Thank you for helping to bring this change to Brady's life!
Nate is 10 year old boy. He loves his animals and has lots of pets -
a hamster, turtles, fish and a cat. He has lots of friends, and plays
with video games and Legos, and he's a huge Star Wars fan and
has tons of Star Wars toys and costumes. He's very close with his
big sister, Aryana, and his parents, Merriah and Spencer, and loves
family holidays. Nate has severe epilepsy. He has status
epilepticus seizures; seizures that last several minutes and rob him
of precious oxygen. Nate has been through years of medication
trials, therapies and doctor appointments. This is a life threatening
condition. Sadly, Nate is not a candidate for brain surgery and is at
a very high risk for SUDEP, or Sudden Unexplained Death in
Day to day medications are not working to prevent the seizures,
and he has to be given emergency medication when a seizure
begins. His parents are almost afraid to sleep, in case he has a
seizure in the middle of the night and they can't respond in time with
the emergency medications that will shorten these deadly attacks.
A seizure alert dog will tell the family when Nate is about to have a
seizure, giving his family time to administer the necessary
medications. This dog will save precious minutes, and save Nate's
life. Little Angels will need to spend $10,000.00 to train and pair a
dog with Nate. Please help us raise money to cover the cost of
bringing this life-saving animal in their family.
Logan and Kaleb are amazing 2 year old twins afflicted with a very
rare and catastrophic form of genetic epilepsy. These boys came
home healthy and happy after birth and we were settling into life as
first time parents with my husband a full time student. It was a busy,
crazy and fun blur. Then May 11th happened - the day of their 4
month well baby check. Our loves received the first vaccination (a
combo of 5 actually) and six hours later, while I was home alone,
Kaleb did a weird jerk while nursing. He immediately went into a
huge grand mal seizure, unresponsive and turning gray in the face. I
was on the phone with 911 in less than 5 seconds. Unfortunately, I
knew exactly what was happening. I also knew he did not have a
fever and that it was bad that it just kept going, requiring multiple
doses of rescue medication to stop.
Upon arriving to Seattle Children's ER, Logan began seizing also!
His seizure also required multiple doses of medications to stop and
was prolonged. This was the first day of our family's life-long battle
with Dravet Syndrome. In 95% of these cases the gene is not
inherited from a parent but a spontaneous occurrence, meaning
Dravet simply chose our little angels. Dravet is
accompanied by learning difficulties, behavioral problems and
severe global delays, especially language and motor. The disease
is progressively detrimental with most children developing normally
for the first 1-2 years of life. This dynamic duo will be dependent on
others for life. These boys are such happy, sweet and loving
characters! So full of personality.....one therapist calls them her
Cherubs, another her Giggle Boxes. They work hard in their
therapies, love life and adore being around other kids. They love
each other so much and we are honored to be their parents, even if
it is a tough road. They truly are the light in our lives. We are doing
whatever we can to assist them in becoming as independent as
possible. One critical component we must have in place
for them is a service dog. This dog will become an integral part of
their everyday lives bringing hard to obtain piece of mind for their
parents and potentially life saving, highly skilled companionship to
each of them.
Hi my name is Marybeth, I am six years old and I have epilepsy.
Please help me get a seizure assistance dog! I have been having a
really tough time lately. I have different kinds of seizures and have to
sleep with my mom at night; I cant ever be alone. A seizure dog
would change my life, it would be my best friend and keep me safe
and even sleep with me at night. My seizure medicine makes me
feel funny and it's hard to be around people and stay in school
sometimes. I just know in my heart this will help me so much.
When I feel okay my favorite thing to do is sing and dance! I also
love to go to the park with my big sister. Please donate today and
help me be able to get my seizure dog so I have more days feeling
Thanks, love Marybeth
|Help Support Children
who suffer from seizures today!